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Still's Disease Awareness Day

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Still's Disease Awareness Day is a worldwide observance in the USA

Still's Disease Awareness Day in the United States is observed annually to raise awareness about Still's disease, a rare type of inflammatory arthritis characterized by high fevers, rash, and joint pain. It affects both children and adults, with juvenile-onset known as systemic juvenile idiopathic arthritis (SJIA) and adult-onset called adult-onset Still's disease (AOSD).

Date:

  • Still's Disease Awareness Day is not acknowledged on a specific date nationally; various organizations may choose different dates to promote awareness.

History:

  • The history of Still's Disease Awareness Day is not well-documented. The day likely originated from patient advocacy groups and healthcare organizations seeking to increase visibility for the disease and support for those affected by it.

Traditions:

  • Activities typically include educational campaigns led by healthcare providers and patient advocacy groups.
  • Social media campaigns using specific hashtags to share personal stories, information, and support.
  • Fundraising events to support research into treatments and a cure.
  • Lighting landmarks in the color associated with rheumatic diseases awareness (such as blue or purple) to draw public attention.

What People Do:

  • Patients, families, and supporters may participate in events or online forums.
  • Wear ribbons or wristbands in solidarity with those affected by Still's disease.
  • Healthcare professionals may host informational sessions or publish educational materials.
  • Advocacy efforts may include contacting legislators or writing op-ed pieces to encourage policy change related to research funding and healthcare access.
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