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Still's Disease Awareness Day
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Still's Disease Awareness Day in the United States is observed annually to raise awareness about Still's disease, a rare type of inflammatory arthritis characterized by high fevers, rash, and joint pain. It affects both children and adults, with juvenile-onset known as systemic juvenile idiopathic arthritis (SJIA) and adult-onset called adult-onset Still's disease (AOSD).
Date:
Still's Disease Awareness Day is not acknowledged on a specific date nationally; various organizations may choose different dates to promote awareness.
History:
The history of Still's Disease Awareness Day is not well-documented. The day likely originated from patient advocacy groups and healthcare organizations seeking to increase visibility for the disease and support for those affected by it.
Traditions:
Activities typically include educational campaigns led by healthcare providers and patient advocacy groups.
Social media campaigns using specific hashtags to share personal stories, information, and support.
Fundraising events to support research into treatments and a cure.
Lighting landmarks in the color associated with rheumatic diseases awareness (such as blue or purple) to draw public attention.
What People Do:
Patients, families, and supporters may participate in events or online forums.
Wear ribbons or wristbands in solidarity with those affected by Still's disease.
Healthcare professionals may host informational sessions or publish educational materials.
Advocacy efforts may include contacting legislators or writing op-ed pieces to encourage policy change related to research funding and healthcare access.